Knowing that the day is coming when your loved one -- won't know you-- is the most horrific feeling of them all for an Alzheimer's caregiver.
I often use the term "living Alzheimer's from the front row". This term describes caregivers that watch Alzheimer's take its course 24 hours a day, seven days a week.
Once Alzheimer's disease strikes, Alzheimer's caregivers get to witness the craziness that comes with Alzheimer's day in and day out.
If you think it is disconcerting to see someone suffering from Alzheimer's for a few hours, a few days, or a week, think about what it might be like -- for every hour of every day for years.
Most people give up trying to understand Alzheimer's disease. Why? Because Alzheimer's is difficult to think about. Most people sitting in the back rows don't want to think about Alzheimer's. It is too painful. They'll leave the thinking and doing to the person sitting in the front row. Feeling?
On one hand, you have the person that has Alzheimer's disease; on the other hand, you have the person responsible for caring for that person -- the Alzheimer's caregiver.
The caregiver is responsible for the safety and care of the Alzheimer's sufferer. They are also responsible for their own emotional and psychological well being. A dual burden.
Alzheimer's kills the brain of the person suffering from Alzheimer's. It will also try and kill the brain of the Alzheimer's caregiver. I doubt that many people know or understand this burden. If they knew or understood they would move up a couple of rows. Get out of the back row -- maybe.
Did you ever sit in the back row at a play? Every sit in the front row at a play? The view is very different.
Unless you are an Alzheimer's caregiver it is difficult to understand or comprehend what it is like living in the front row. The behavior. The illness. The death sentence. Why are their so many empty seats?
Until you sit in the front row you won't be able to comprehend what it is like living in the "front row".
Back To Top